Protecting ADHD Care: We Need You
Your Support and Advocacy Matters
Your voice matters. Your experience with ADHD matters. Now is the time for you to take action and be an advocate for the ADHD community in whatever way you are able to contribute.
By clicking Take Action Now, you can tell CHADD how you are able to help advocate to protect the ADHD community from the challenges to treatment options, educational and workplace protections, federal funding for ADHD research and support, and misinformation about ADHD.
There are more than 22 million adults and children in the United States estimated to have ADHD. They are worthy of support and advocacy. Knowing the challenges now in front of them—and in front of you—are you ready to pitch in and be an advocate for your ADHD community?
Become A CHADD Member
CHADD members play a crucial role in our advocacy efforts and you join a community full of resources, support, and services. Together, we can push for policies that create lasting change and improve support for our mission at a broader level.
Your story is incredibly valuable! Your testimonial will be a powerful tool in advocating for policies that support our mission, and we appreciate your role in helping us drive meaningful change.
Let your representatives know what matters—Section 504 support, equal rights for neurodiverse individuals, access to treatment, and continued funding. Your grassroots efforts are essential in shaping policies for our community.
When you donate to CHADD, your dollars go right to work. With your most generous donation, we can do more—more evidence-based information, more top-notch support, and more steadfast advocacy.
EMERGING CHALLENGES IN THE ADHD COMMUNITY
Treatment options for ADHD
ADHD is best treated through a combination of approaches. For many people that may include lifestyle support, behavior management or parent training, academic or workplace accommodations, therapy, and/or medication. Every person’s treatment plan should be tailored to their specific needs and not every plan will include the listed approaches.
Recent executive orders could reduce or eliminate the choices an individual, or a parent for their child, and their ADHD specialist could make in designing their treatment plan. Changing the established, evidence-based standard of care could lead some insurance organizations to no longer cover prescribed treatment, whether that is parent training programs, therapy, or medication to treat ADHD symptoms. This could place care options out of financial reach for the majority of people in the ADHD community.
Funding that helps support CHADD and the ADHD community
Research on ADHD has a long history of receiving support, both from public universities and research hospitals and through funding from various agencies in the federal government. Many research universities and centers are now facing a loss of federal funding or a steep decrease in funding which will affect medical research, including for ADHD, for at least a generation. Health and community organizations are worried that critical funding awarded by or from contracts with the federal government will be discontinued.
CHADD hosts the National Resource Center on ADHD, the national clearing house for the latest evidence-based information on ADHD, sharing information to individuals and families that they can use today to improve their lives. The NRC makes CHADD unique, as all its information is vetted by leading professionals on its advisory board and researchers on ADHD connected with the CDC.
The NRC is primarily funded through a cooperative agreement with the Centers for Disease Control and Prevention’s National Center on Birth Defects and Developmental Disabilities. It is the premier program for disseminating accurate information on ADHD and providing support for families who have loved ones with ADHD.
Without this federal support, CHADD would have to seek other sources of funding to continue to provide these resources to the ADHD community. We know there are many generous donors and endowment organizations, but very few of them can make up the financial gap if federal support is discontinued. It would mean a reduction in the valuable services CHADD provides for the ADHD community.
Section 504 protections, in both educational and workplace settings
Groundbreaking at the time, Section 504 of the Rehabilitation Act of 1973 prohibits discrimination based on a person’s disability, including ADHD. This law has opened doors for students and adults to receive appropriate accommodations at school and in the workplace, allowing them to be successful. It has helped children become more successful students and prevent ADHD from impeding their learning. For many adults, it has allowed them reach their career goals.
Recent court challenges to Section 504 could mean a weakening of those rights and protections in academic and workplace settings. Depending on the federal court’s final rulings, it could also mean that Section 504 would be eliminated entirely, along with the protections and accommodations children and adults with ADHD currently receive.
CHADD’s advocacy and public policy committee is following this situation closely and will join with other organizations in encouraging the courts to affirm and continue to support Section 504.
Progress made in the availability of evidence-based ADHD information
CHADD's National Resource Center operates the only ADHD helpline in the United States, taking more than 2,500 phone calls and email requests in 2024. It maintains a database of specialists across the country, including resources for lifestyle support such as coaching, diet, and exercise. It has a catalogue of evidence-based information on all aspects of ADHD for children and adults that is entirely free to the public.
CHADD’s insistence on science-based information set the standard. Today, there are websites, magazines, and conferences that provide accurate information on ADHD because CHADD insisted on no less in our publications.
The work of disseminating accurate, science-based and evidence-based information is at risk. There are many influencers and organizations that want a place at the table where ADHD conversations are held—and not all of those organizations are willing to meet that high standard of providing accurate information. Sadly, some of these organizations trade in misinformation and fears about the science of ADHD and use the opportunity to push false claims.