Social Media Videos Often Share Misinformation About ADHD

 ADHD Weekly, May 19, 2022

Social media provides a place for teens and young adults to share what it is like to live with ADHD. While this has led to more awareness about ADHD, and potentially more acceptance, there’s so much information swirling around on social media that it can be hard to separate facts from myths.

TikTok videos using the ADHD hashtag have 11.4 billion views. Some ADHD experts have joined the ranks of TikTok users, like psychiatrist Edward Hallowell, MD, the author of Driven to Distraction. Dr. Hallowell regularly posts videos and strategies for building on strengths while addressing the challenges of ADHD. However, not all content on TikTok is factual, nor does it replace seeing your doctor.

Viral misinformation

Researcher Anthony Yeung, MD, and colleagues viewed one hundred of the most popular TikTok videos on ADHD. They found that these videos were highly relatable, but approximately 52 percent were misleading. Most videos were uploaded by TikTok users who are not healthcare practitioners. The videos posted by healthcare practitioners, says Dr. Yeung, were better quality and contained more useful information.

ADHD professionals worry about the large number of videos that contain misinformation, leading some TikTok users to self-diagnose and seek treatment they may not need.

“Although social media can reduce mental health stigma and improve health literacy, there is also concern about misinformation and the potential for illness/health anxiety,” Dr. Yeung writes.

Experts refer to this as “cyberchondria” and attribute it to the volume of unmoderated, user-generated content. Dr. Yeung’s study also found that social media algorithms tend to show users similar videos, which may increase the spread of misinformation. While platforms like TikTok offer both good and misleading information, users should not consider these videos a reliable source for medical information.

Specialists decide to counter misinformation

ADHD professionals who view the increased misinformation with growing concern have taken to TikTok themselves to create more fact-based content. Sasha Hamdani, MD, a psychiatrist in Kansas City, Kansas, learned about TikTok through her patients and decided to check it out. At first, she was impressed that there was so much discussion about mental health, but after seeing videos that promoted myths about ADHD, Dr. Hamdani decided to post her own videos.

“There was some good information, some bad information, and some absolute garbage,” she recalls. Dr. Hamdani points out some popular myths circulating on TikTok, including, “ADHD medication is addictive” and “ADHD is a fancy term for laziness.” She highlights the facts in her own TikTok videos, which include topics such as “ADHD is more than just a focus problem” or “how ADHD symptoms can fluctuate with hormones.”

Several mental health agencies are watching certain advertisements on TikTok from for-profit telehealth companies with growing concern, noting that they contain false information. Media Matters for America, a non-profit organization that monitors media outlets and social media, has also been studying the rise of short videos in social media. Media Matters found that in addition to misleading user-uploaded videos, misleading advertisements are targeting teens and young adults.

“The ads seem to be capitalizing on the TikTok phenomenon of ADHD self-diagnosis, in which some creators oversimplify the disorder,” it stated in one report, “leading viewers to try to decide themselves whether they have the disorder, sometimes incorrectly. This can push users to inappropriately seek ADHD medication, which can have dangerous side effects if used improperly.”

Some of the misleading ads discussed in the report were for a telehealth company whose ads were banned earlier this year because they promoted negative body images. The company’s ads about ADHD have remained on TikTok’s platform, however.

Separating myth from fact

Given the popularity of TikTok and other short-video platforms, how can you determine what information is factual? TikTok now includes warnings with videos that cannot be verified as factual. But not all videos are fact-checked. If a video is not verified, and a user tries to share it, a pop-up warns them that they will be sharing misinformation.

It’s a good idea to consider whether what you see on short video platforms is someone’s personal experience or a video uploaded by a healthcare practitioner like Dr. Hallowell or Dr. Hamdani. And while you can learn about ADHD and some of its symptoms, making a self-diagnosis is always a bad idea. Bring what you’ve learned to your own medical professional or make an appointment with an ADHD specialist for an evaluation.

Dr. Hamdani considers TikTok a great resource that helps to reduce stigma surrounding certain health conditions when used with caution.

“Being a content generator on TikTok is not something I predicted,” she says, “but I’ve found that the ADHD and mental health community is so vocal, supportive, and empowering. For someone who has struggled with ADHD, creating these videos, interacting with followers, and absorbing other people’s experiences has been so validating.”

To better understanding social media and ADHD:

Join the discussion: What reliable sources of information have you found through social media?